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  1. Decoding Fear 🚧
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Neurodivergent Upgrade

On this page

  • Fear Is Not Evenly Distributed
  • Why This Belongs on a Neurodiversity Website
  • What Fear Does When It Is Never Decoded
  • What Choosing to Decode Looks Like
  • Being Comfortably Afraid
  • What This Produces
  • A Note on Staying and Leaving

Decoding Fear 🚧

Examining the Unexamined

This page is a companion to Accessible Boundaries. It is written for anyone, but particularly for neurotypical people, who want to understand why cross-neurotype relationships are harder than they look, and what it means to choose to show up for them anyway.

This is not an obligation to stay in harmful relationships. It is an invitation to tell the difference between discomfort and harm, and to understand why that distinction has always carried more weight for some people than others.


Fear Is Not Evenly Distributed

We all carry fear. What differs is where it came from, and what it has already cost by the time it reaches us.

Michelle Obama grew up watching what unexamined fear does to a life over time, not as an abstract idea, but in the people she loved most.

Her grandfathers were both Black men who had been born in the Jim Crow South. Both were intelligent. Both had the skills for stable, well-paying trade work, one as an electrician, one as a carpenter. Both were locked out of union membership because of their race, which at the time controlled access to that kind of employment (Obama 2022; Mendoza 2023). They migrated north to Chicago hoping for different conditions and found the same racial caste system waiting for them. They worked laundry jobs, dish pits, bowling alleys. They raised their families carefully and with love. And they learned, over decades, that the world outside a small familiar radius was not safe for them.

That lesson did not stay abstract. It became physical. It became the size of the world they would allow themselves to move through.

Her grandfather Southside avoided doctors and dentists. He could not bring himself to trust anyone outside the family, including the professionals who could have caught his lung cancer early. His home was warm and full of jazz and laughter. It was also, functionally, the boundary of his life (Obama 2022; Mendoza 2023).

Her grandfather Dandy rarely navigated outside his immediate neighbourhood. When Obama was a teenager, he drove her to a medical appointment in an unfamiliar part of the city. She watched him run a red light, make a sloppy lane change, clench his jaw the entire way there. He was around 65 years old and had simply never needed to go that far before. The fear was in his body. It was driving the car.

“Our hurts become our fears. Our fears become our limits. For many of us, this can be a weight carried by generations.” — Michelle Obama (Mendoza 2023)

This is not a story about personal weakness. It is a story about what systemic exclusion produces in people over time, and what it continues to produce in their descendants, long after the original threat has shifted shape.


Why This Belongs on a Neurodiversity Website

People with disabilities are killed by law enforcement at a rate that most people do not know. Roughly half of all people killed by police in the United States have a disability, and those numbers are concentrated in Black and brown disabled bodies (Perry and Carter-Long 2016; Center for American Progress 2020).

This is not incidental. It is the downstream consequence of a pattern that begins in ordinary relationships: someone encounters behaviour that does not match what they expect, reads it as threatening, and acts on that reading without stopping to investigate it.

A person stimming in public. A person who does not make eye contact when addressed. A person who becomes non-verbal under stress. A person who explains themselves at length and with intensity. None of these are dangerous. All of them have been treated as if they were (Strassmann-Peña 2023; Center for American Progress 2020).

The Double Empathy Problem tells us that when a neurotypical person and a neurodivergent person interact, the communication gap runs in both directions, neither person is automatically legible to the other (Milton 2012; Zamzow 2021). What is not symmetrical is who bears the cost when that gap goes unexamined.

Neurodivergent people, and particularly neurodivergent people who also carry racial, gender, or class-based marginalization, have spent their lives translating themselves for others, often at significant personal cost (Price 2022; Raymaker 2022; Omeiza 2024). When that translation is still not enough, the consequences range from broken relationships to lost employment to contact with systems that were not built with their safety in mind.

Strategic ignorance is what happens when discomfort is never examined and hardens into assumption (McGoey 2012). The person who triggered the discomfort becomes responsible for it. And the pattern repeats.


What Fear Does When It Is Never Decoded

Obama describes the adult version of unexamined fear as avoidance, quieter than a child’s shriek, but functionally the same retreat (Obama 2022; Mendoza 2023). You do not put your name in for the promotion. You do not cross the room. You do not have the conversation.

In cross-neurotype relationships, avoidance tends to look like:

  • Withdrawing instead of asking what someone meant
  • Framing discomfort as a boundary before investigating whether the discomfort is accurate
  • Gravitating toward people whose communication style already feels familiar, and interpreting that comfort as evidence that the familiar style is the correct one
  • Clustering in sameness until difference becomes more startling with every encounter

Left long enough, avoidance confirms itself. What started as a jolt of unfamiliarity becomes a settled belief about the person who triggered it. And that person, who may have been offering trust by communicating directly and honestly, receives the message that there is something wrong with them for doing so.

Obama is direct about where this leads at scale:

“When we avoid what’s new or different and let those impulses go unchallenged, we are more likely to seek out and privilege sameness in our lives… When we steep ourselves in sameness, we only become more startled by differentness. If fear is a response to newness, then we might consider the idea that bigotry is often a reaction to fear.” — Michelle Obama (Mendoza 2023)

Ableism follows exactly this pattern. The features that make a neurodivergent person’s communication legible as abnormal, directness, literal interpretation, emotional transparency, visible stimming, are not neutral perceptions. They are measurements against a neurotypical norm that most people absorbed without ever being told it was a norm (Strassmann-Peña 2023; Bouckley 2022).


What Choosing to Decode Looks Like

Obama’s parents saw what unexamined fear had cost their own parents and decided to do something different. They did not pretend that danger did not exist; the South Side of Chicago was not a safe place in every direction, and they knew it. What they did was teach their children to tell the difference between a real threat and an unfamiliar one (Obama 2022; Mendoza 2023).

Her father explained thunderstorms by breaking down the mechanics: not to dismiss the fear, but to give it solid information to work with. He did not tell her to get over it. He gave her tools to investigate it.

Her mother demonstrated what it looked like to stay functional in the presence of difficulty. She swept spiders off doorsteps, shooed snarling dogs, tossed burning Pop-Tarts into the sink before anyone could spiral. She was not unafraid. She moved anyway.

“Competence was a form of safety. Knowing how to step forward despite our nerves was protection in and of itself.” — Michelle Obama (Mendoza 2023)

This is the same work that cross-neurotype relationships ask of neurotypical people. Not expertise. Not the elimination of discomfort. The willingness to pause, investigate, and stay present long enough for the static to clear.

In practice, decoding looks like this:

Pause before the first conclusion. When something feels like conflict, ask whether you are responding to what actually happened or to what that behaviour would mean if a neurotypical person had done it. Directness, persistence, and detailed explanation do not carry the same social meaning across neurotypes (Milton 2012; Strassmann-Peña 2023).

Ask before deciding. You do not have to decode from a distance. Asking what someone meant is one of the most stabilising things you can offer someone who has been misread repeatedly. It tells them the conversation is still open.

Let familiarity reduce the noise. The fear response diminishes with exposure. This is not about tolerating something harmful. It is about giving yourself enough data points to distinguish unfamiliarity from genuine risk.


Being Comfortably Afraid

Obama does not describe the goal as fearlessness. She describes it as being comfortably afraid, neither fully comfortable nor fully afraid, but able to operate in the middle zone (Obama 2022; Mendoza 2023).

“It’s about learning to deal wisely with fear, finding a way to let your nerves guide you rather than stop you… You accept that there’s a middle zone and learn to operate inside of it, awake and aware, but not held back.” — Michelle Obama (Mendoza 2023)

This is what consistent cross-neurotype allyship requires. Not the absence of discomfort. The decision to remain present and curious, and to recognize that the jolt you are feeling is more likely to be the feeling of something new than the feeling of something dangerous.

The fearful mind, Obama notes, will always be there (Obama 2022; Mendoza 2023). It will tell you to leave. It will tell you the situation is worse than it is. It will rehearse catastrophe and throw rocks at the possibility in front of you. Getting better at this does not mean silencing it. It means learning to recognise its voice and deciding, deliberately, not to let it drive.


What This Produces

Obama reflects on what she would have lost if she had let her fear stop Barack from running for president. Not only for her family, but the history that would not have been made, the people she would not have met, the version of herself she would not have become (Obama 2022; Mendoza 2023).

The same logic applies here, at a different scale.

When a neurotypical person does the work of decoding, and stays in the room long enough to genuinely see the person in front of them, what follows is not only a better relationship. It is a measurably broader set of capacities: active listening, precision in communication, cognitive flexibility, the ability to identify root causes rather than react to surface signals (Kirby and Smith 2021; Edmondson 1999). These skills do not stay contained. They transfer into every relationship and institution that person touches.

For the neurodivergent person, who has likely spent years explaining themselves to people who were not listening, being genuinely seen has consequences in the other direction. Reduced masking. Reduced burnout. A relationship that does not cost them their energy simply to maintain (Raymaker 2022; Price 2022).

Obama’s grandfathers did not get that. The world they moved through was not built for them, and the fear they carried to protect themselves eventually became the thing that narrowed their lives, the teeth that rotted, the cancer caught too late, the city blocks that became the limit of what felt possible (Obama 2022; Mendoza 2023).

Her parents broke the cycle not because the fear was gone, but because they could see what it cost to let it keep driving.

“I didn’t want to live with the alternative version of that story.” — Michelle Obama (Mendoza 2023)

Neither do the people in your life who are still waiting to be seen.


A Note on Staying and Leaving

This page makes a case for remaining in uncomfortable cross-neurotype relationships. It is not a case for staying in harmful ones.

Discomfort with unfamiliarity is workable. Evidence of harm, a pattern of behaviour with real consequences, that continues after someone has communicated clearly, calls for a different response entirely.

Accessible Boundaries walks through how to tell the difference and what to do with it. The companion page on Unsafe Relationships 🚧 Not available yet TBC addresses what happens when the evidence points in the harder direction.

Healing your fear is work we do for ourselves, for the people in our lives, and over time, for the world. It is not something you owe to someone who is hurting you.

References

Bouckley, Catherine. 2022. “Neurotypical Privilege in the Labour Market.” 2022. https://blogs.lse.ac.uk/businessreview/2022/02/24/neurotypical-privilege-in-the-labour-market/.
Center for American Progress. 2020. “Understanding the Policing of Black, Disabled Bodies.” Center for American Progress. https://www.americanprogress.org/article/ understanding-policing-black-disabled-bodies/.
Edmondson, Amy C. 1999. “Psychological Safety and Learning Behavior in Work Teams.” Administrative Science Quarterly 44 (2): 350–83. https://doi.org/10.2307/2666999.
Kirby, Amanda, and Theo Smith. 2021. Neurodiversity at Work: Drive Innovation, Performance and Productivity with a Neurodiverse Workforce. Kogan Page Publishers.
McGoey, Linsey. 2012. “The Logic of Strategic Ignorance.” The British Journal of Sociology 63 (3): 533–76.
Mendoza, Linda. 2023. “The Light We Carry: Michelle Obama and Oprah Winfrey.” Film or Broadcast. Netflix.
Milton, Damian EM. 2012. “On the Ontological Status of Autism: The ‘Double Empathy Problem’.” Disability & Society 27 (6): 883–87.
Obama, Michelle. 2022. The Light We Carry: Overcoming Uncertain Times. Crown. https://www.amazon.com/the-light-we-carry/dp/0593237463.
Omeiza, Kala Allen. 2024. Autistic and Black: Our Experiences of Growth, Progress, and Empowerment. London, UK: Jessica Kingsley Publishers. https://us.jkp.com/products/autistic-and-black.
Perry, David M., and Lawrence Carter-Long. 2016. “Media Coverage of Law Enforcement Use of Force and Disability.” Ruderman Family Foundation. https://rudermanfoundation.org/white_papers/ media-coverage-of-law-enforcement-use-of-force- and-disability/.
Price, Devon. 2022. Unmasking Autism: The Power of Embracing Our Hidden Neurodiversity. New York: Harmony Books.
Raymaker, Dora. 2022. “Understanding Autistic Burnout.” 2022. https://www.autism.org.uk/advice-and-guidance/professional-practice/autistic-burnout.
Strassmann-Peña, Sophie. 2023. The Unofficial Guide to Ability and Neurodiversity. Open Science Framework. https://osf.io/t4e37/?view_only=8ec33d554c2f4d79a109b62cd7cee058.
Zamzow, Rachel. 2021. “Double Empathy, Explained.” https://doi.org/10.53053/MMNL2849.

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